I Read This On The Internet – One of a Kind

This is a really lovely story focusing specifically on the struggles a young family has in getting a diagnosis for their son with an incredibly rare genetic disorder, and more broadly on the way that social media and informed families are changing the face of medicine and research. Lovely read (click the image below to be taken to The New Yorker).

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One Response to I Read This On The Internet – One of a Kind

  1. Thank you for spreading the word about NGLY1! We really appreciate your kind words and assistance in building awareness. 🙂 Best wishes to you and yours!

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